Caregiving
for children with neurodevelopmental disabilities places substantial
psychological, physical, and financial demands on families, often resulting in
heightened caregiver burden. The present study examines the influence of
socioeconomic status (SES) on caregiver burden among parents of children
diagnosed with Autism Spectrum Disorder (ASD) and Cerebral Palsy (CP), two
conditions characterized by chronic care needs but differing in behavioural and
physical dependency profiles. Using a comparative cross-sectional design, the
study assessed 50 primary caregivers (25 parents of children with ASD and 25
parents of children with CP) recruited from special schools and therapy centres
in Varanasi, India. Socioeconomic status was measured using the Kuppuswamy
Socioeconomic Status Scale, while caregiver burden was assessed through the
Burden Assessment Schedule developed by the Schizophrenia Research Foundation
(SCARF), India.
Findings
revealed a statistically significant difference in caregiver burden between the
two groups, with parents of children with ASD reporting higher levels of burden
than parents of children with CP. Additionally, socioeconomic status emerged as
a strong predictor of caregiver burden, with caregivers from lower SES
backgrounds experiencing significantly greater burden compared to those from
middle and higher SES groups. The results highlight the compounding effects of
financial strain, limited access to healthcare services, and inadequate social
support on caregiver well-being. Behavioural challenges, long-term
rehabilitation needs, and uncertainty regarding the child’s future further
intensified caregiver stress.
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